Friday, July 19, 2024
I’m sitting here on my covered patio with some light rain going and it feels like a gift. It’s Wednesday morning (7:00 am) and I feel like I’ve already lived many lives this week.
I decided to write about this to help anyone else and because a lot of us in the blog world are experiencing this stage of life – aging parents.
And, if this isn’t your thing, that’s ok, too!
My mom in June with her three daughters:

My mom is super strong and independent. She suffered a stroke last June and fully recovered with no rehab or therapies needed. It was pretty amazing. She is 81 and lives alone since my dad passed. None of us live in the same town, nor does she have other family there. So, that’s really hard.
Last week she started saying that she felt weak and had no appetite. She went to the doctor on Wednesday and he said she was dehydrated. She did a few things the rest of the week, but still didn’t feel that great. Over the weekend, she continued to feel weak. My two sisters and I were available to go see her or take her back to the doctor, but she refused the offers. Sunday night at 10 pm she finally agreed to let her friend take her to the ER. She is really lucky to have a really good friend who she has traveled with and who also sadly shares the widow status with her. In fact, their husbands died within 3 weeks of each other.
So, her friend kept us updated from 10pm until almost 3 am Sunday night into Monday. They finally saw my mom, admitted her, and then started giving her blood as they determined that her hemoglobin was down to 4.6 and it’s supposed to be 11-12.
I had already told my sisters that I would head there in the morning on Monday. So, I was going for sure. We learned with my Dad in the hospital for 7 weeks, and then my mom’s stroke that we have to take turns and be smart about creating a shift schedule I guess you could say. So, I was going to take shift number one and see what we were dealing with.
Her friend started texting us again around 7 am (she had already gotten back to the hospital just 4 hours after going home! Good friend!) and told us mom was getting more blood and doing well. I told her I was on my way and would be there a bit after 8 am.
Well, as I was driving, the friend started texting us that we all needed to come and that my mom’s BP, body temp, etc. were all very low and there were many health professionals running to her room.
So, my two sisters both started getting stuff together to come, too. We talked on the phone through tears and just talked about being on the same page, my mom’s wishes, and things like that.
I got there and my mom had gotten stabilized but had been moved to ICU. I thanked the friend and she left. I started taking notes on everything that the friend had told me, then a nurse and doctor came out to talk to me and even though she was stabilized at that point, the doctor made it clear how serious it was. The nurse asked me about wishes for “full code” which means to do anything necessary to keep her alive. So, this was serious.
I got to go back and see my mom and she looked really bad. She knew who I was and was talking but I couldn’t understand her very well.
One sister arrived and I met her at the elevator and I filled her in before we went back to see my mom. Her body temp had been 95 and they were using a warming blanket to bring it up. Her blood pressure had been really low and it was coming up with dopamine. They were going to do an endoscopy to find out if she had an internal bleed and they were going to do a colonoscopy but needed to wait “a few days” until she was stronger.
The second sister arrived and we filled her in, too. She had all her kids but we told her to keep them at mom’s house for now because of how much equipment was in the room and how bad she looked. Mom was talking and knew who all of us were but she was pretty out of it and sleepy from all the drugs. The endoscopy was done and we found out it was clear. All three of us got to talk to the doctor.
Nothing happens (or not as much) on the weekends in hospitals so we were all thankful it was a Monday!
At some point, Molly and I stepped out to find the power of attorney paperwork in case it was needed. Molly is the only one living in the same state as my mom, so it was easiest to make her the POA. We dropped it off with her financial advisor in case we needed to start talking about the business side of things -what money is set aside for mom’s care. It may seem in poor taste to mention this, but please make sure you have this is place for your parents.
As the day went on she kept improving! Her body temp was normal, her BP was normal, her talking was normal and she was acting like herself. Then, we got the news that her hemoglobin was back to normal – at 12!
So, something like this is not only physically exhausting but also mentally and emotionally exhausting.
The three of us talked about how we all have our strengths – I am the oldest, type A, ask lots of questions, take copious notes. Molly, the baby, is probably the best caretaker type, and Kate the middle is very smart, does the research, and is really flexible and able to do whatever is needed in a crisis. She is so strong and such a rock and has been through a lot so is really good with stuff like this.
Kate’s three kids got to come over and visit for a while.
To go from thinking we are saying good bye at 7 a.m. to such good news by late afternoon was pretty crazy and a testament to how strong our mom is!
So, Kate had three kids and a dog with her and was staying at my mom’s house because she lives over 3 hours away. Molly was also staying at my mom’s house because she lives 2 hours away. I decided to go on home because it was my anniversary – lol. And, now it seemed weird that Tom’s Montana trip got cancelled because of the timing of everything with my mom, right? I’m still sad he couldn’t go, but it was nice to have him here as my rock.
Tom and I met at a Mexican restaurant when I got back to town and I showered and crashed, but couldn’t sleep. There were so many unknowns and I honestly think the oldest child feels responsible and that was me.
Sunday night I probably got two hours of sleep, Monday night I probably got four hours of sleep, and then finally last night I slept great!
So, back to the story…
Another thing I always do is call the night shift nurse to get a report before they switch to day. I found out that mom had bleed significantly (remember that we were looking for the reason the hemoglobin got so low) and they were going ahead with a colonoscopy. Maybe this was actually good because before they were going to wait a few days.
Kate and Molly got back to the hospital after I told them this and started sending me reports that she was getting prepped.
Tuesday morning Tom drove me back. It was really nice to have him drive since I was so tired. I also didn’t know what the day held. We were lucky to have the kids on hand to handle the puppy all day, too.
Tom dropped me off and went and ran a few errands – checked on my mom’s house, her garage door opener was broken, got gas, stuff like that.
The hospital had a German food truck already parked out front so I told Tom it was his reward! Tom loves German food and was born in Germany.
So, I was at the hospital at 9:00 ish and met my sisters in the colonoscopy waiting room (that’s not really what it was called) and I was ready to take over. They wanted me to remind the staff that we were there if the doctor wanted to talk to us. They like me to handle the communications issues and I have no trouble talking (or writing – as you can see – if there is anyone still out there – ha!).
So, we didn’t have to wait long and a nurse came out and told us that they found her issue and it all has to do with the blood thinner she is one because of the stroke. She had something called ischemic colitis and it’s a very easy fix with an antibiotic which they had already started in her IV.
What? We were just dumbfounded. So we had gone from thinking this was it Monday morning to Tuesday morning being told she just needed an antibiotic.
The rest of the day we didn’t get to talk to anyone else – missed the doc doing the rounds while the nurse was talking to us in the waiting room – boo and mom was sedated and sleepy until dinner time. We kept going in and out but mainly stayed in the waiting room.
Molly’s hub arrived with 3/4 of her kids so that was nice. Then, Molly’s hub and Tom went and did some “guy stuff” so that was good for them. I think they shopped and looked at ATVS. Yes, we also ate German food in the waiting room. Sorry to anyone for the smell of sauerkraut. Also, the elevator still smells like sauerkraut.
A case manager came to get information from us for future discharge just to get some things on file. She also gave us lots of resources for maybe not now but in the future. That was really helpful.
Tom and I stayed until 6:00, I think. Molly went home around 7:00 with her hub and kids (in 2 cars).
Kate is doing today (Wednesday) and then I go back tomorrow (Thursday).
Molly is doing Friday.
We just don’t know how long she will be in the hospital and we learned the lesson that as much as we like it to be all three of us, that we have to manage our resources.
If your loved one is on a blood thinner and gets very weak, this is extremely common.
So, now it’s Thursday morning as I finish this post…
So, Wednesday on Kate’s shift, she got to talk to the doctor. He said that even though we have figured out the immediate problem, that she is still very sick and this has to be happening (losing blood – not producing enough blood) for some reason that will be figured out in an out patient setting. So, we were also kind of shocked about this after what we thought was good news the day before. I guess we shouldn’t have been shocked, but we were.
He said she would be going back to her hematologist and her oncologist after this immediate threat is handled. She has had lymphoma before and she was having kidney issues and had already met with both of these doctors before this happened. In fact, they had thrown out a possible multiple myeloma possibility but my mom refused the biopsy to know for sure. So, even though I was home on Wednesday, Molly was home on Wednesday, and Kate was the hospital person, we talked and texted for quite a bit and were kind of reeling from this latest news.
Remember I said that my mom is very strong? Well, what comes with that is independence and stubbornness, too. After her stroke last year she refused physical therapy and she has already made some remarks about how she plans to handle the current situation. And, she is still saying she does not want the biopsy.
She definitely wants to continue to live alone in HER house, but we know that at the very least she will need some help. Kate started the conversation about her needing to do some therapies and agree to some things if that is her goal.
Any advice is appreciated! If you have also been through this, let me know. And, maybe you won’t need this for a long, long time with your parents, but I hope it will help someone.
Also, this week I finished this:

Loved it! So, I think the most recent Emily Henry and the first Emily Henry were my faves. Her others were just meh for me.
And, I started this:

I’ve been so busy it’s been hard to shop, but I managed to still participate in Prime Days!
I ordered sunglasses that go over glasses (you know you’re old when…), a “set” recommended by a few people all over the internet, and a Nespresso! The price was great and if I don’t like it I will send it back.

Our Mexican anniversary dinner:

I really need to do a Tom appreciation post. On my day back at home we went to Costco together even though I told him it was his day to pick what we did – and he just really let me rest. He did keep his days off this week since he was supposed to be in Montana. He has helped me, done house projects, and done lots of puppy time. Tom is not a grand gesture guy, but he’s pretty great to have around.
If anyone is still here, happy Friday and I hope you have a fun summer weekend!
Amy
































































































